Edited
from Carepages
May
08, 2008
Hi everyone, Just wanted to pop in and say hello..and let everyone
know that Cameron has been doing very well these past few months.
He will have his yearly Cardio Visit on June 17th at Childrens..all
day appointment but looking forward to hearing how he is doing
heart wise. He continues to do great in school. Learning so much
and we are so proud of him. He is just so smart...and his 6th
Birthday is coming up next week..it amazes me how far he has come
and how he continues to be so energetic even with school....He
has all the teachers and especially the office workers and Nurse
wrapped around his finger. God Bless to everyone who tunes in
and continues to pray for us.
Deeana
August
24, 2007
Sorry there has been no update lately, Our daughter Valerie was
killed in a car accident on July 27th and we have been so upset
and trying to come to terms. Cameron just loved her and she was
on her way to see us when she was killed. I put up her picture
with Cameron in the main display..its of the day he came home
from his Fontan surgery and all he wanted to do is cling to her.
She was going to get married next month on the 9th and its just
been so hard for all of us. Cameron is doing ok..he had a pacemaker
clinic on the 7th of Aug..and did well so he don't have to be
checked for 2months. But he does have an upcoming appointment
with the Nephrology dr. on Aug 31st where they will be checking
his kidney growth..please keep him in prayer that all will be
well and he can do without a future kidney transplant...
He is also heading into his first day of kindergarten on Monday
the 27th..and I still haven't met his teacher...
Thank you to everyone who has been praying for us...its what has
kept us going..and please do keep it up..we really need it. Somedays
I just can't think straight but can feel someone praying for me
and it comforts me to know God has faithful people who really
care.
I'll try and let everyone know how the first day of kindergarten
goes..I'm a little worried about the heat here and how much Cameron
sweats just standing still..but I know I have to let him be a
normal kid even if I don't want too. Well thats it for now..keep
us lifted as we struggle to live each day without our Beautiful
Valerie..God is keeping her safe until we see her again...but
we miss her so.
God Bless,
Deeana
February
27, 2007
I'm sorry its been so long since my last update but he's been
fine. He still has his runny nose and cough and seems that his
pediatrician has decided to take him off all his allergy meds
and just give him one med for the cough...Xopenex inhaler...I
am pretty sure he is allergic to the little dog we have....whom
he calls his best friend...Ginger...she is a (sp)chawawah and
he will be so sad if she has to go...we are going to let my sister
have her for a month to see if he gets better and if he does...then
she will stay with her indefinally but at least Cameron can go
visit her every once in a while but not live with her. Now on
to todays event.
He
had his pacemaker checkup today..it went well..Cameron's pacemaker
is holding the same pattern so far...Dr was pleased that he has
continued the same pattern and not spiriling upward. He said that
his lead might need to be replaced but not in the near future
and that he will continue to monitor the activity it puts out.
Said he still has plenty of battery left and so that is good.
We go back again in a month for another pacemaker check and then
in May for his Echo and Cardio checkup with labs. I was glad though
that Camerons appointment went well and no bad news.
Dr did say that if he becomes very tired to give him a call cause
it might be his pacemaker acting up....scary huh...Just keep him
in your prayers...also since I am requesting prayer...my youngest
grandson Tyler has been sick with double ear infection and miserable...please
pray for this to pass soon. Ok that about it for now..thanks for
tuning in on this channel and I will update again when I have
something to report...Sending Heart Hugs to you all, and
God Bless,
Deeana grandma to Cameron
January
02, 2007
HAPPY NEW YEARS TO EVERYONE!!!
Cameron had his pacemaker checkup today and we finally got home
around 4pm...I really dislike that drive. Anyway his Cardiologist
said he thought one of Camerons leads to his pacemaker maybe having
some problems...and that his thresholds...(which is where he set
his pacemaker at) had went up a little but not like it did before..so
he wants to see him again in a month to see if there is a trend
going on there...I have to tell you I don't fully understand it
all but from what he said he wanted to keep a close eye on this...he
said that Cameron may be having some scar tissue build up around
that one lead but he will know more as he sees what the pacemaker
is doing...which takes time to see if there is a trend. So We'll
be back in a month. I really hope we're not looking at another
surgery down the line....but I need to think positive here..Cameron
is doing well and that is all that matters now...Praise God. Life
is too short to dewell on the what if's ...So once again putting
my worries where worries belong...giving them to God..he knows
what it will take to get us thru whatever comes our way...Praise
God Again. So thank you for keeping us in your prayers...and keep
them coming..I'll update again when there is something to report...so
until then God Bless you all and may this New Year bring nothing
but Good Health and Many Many Blessings your way...
Deeana grandma to Cameron
December
20, 2006
Cameron update...he is getting so spoiled...he sees all the presents
under the tree which are mostly for him and he just can't hardly
wait till christmas...but that part of being a kids at Christmas
time. Anyway he had another Pediatrician visit last Friday and
was taken off Clartin and his nose spray Flonase...it just didn't
work on his runny nose and cough at all...so now he is back on
Singular and a new inhaler called Qvar for his lungs. I hope it
works...He'll go back in a month to see if there are any changes
and if not he will be going to see an alergist or his pulmonologist.
I really think he is alergic to his dog...but he loves her so
much....I may have to get rid of her...but Cameron comes first.
The doctor seems to think Cameron will keep a cold for at least
the first 6months of entering school...since he has never been
around kids in germy enviroment such as pre-school...so maybe
he just needs to build up his immune system. Its funny but he
was clear for about 2weeks after he came off antibiotics then
it started all over again...so doctor may be right....he may be
catching a cold over and over again. The only problem with his
new meds is the fact that he was on Singular when he was 2yrs
old and it caused him to get ear infections over and over again..but
since he is older now doctor wanted to give it a try...so we'll
see if it works better this time.
He got a big surprise on Saturday afternoon...His Aunt Val came
to visit from New Mexico for a week and he is just loving it.
He thinks she will do anything he says and boy is he pushing it
too. When I say no about something he runs and says "Well
Val Will do it" or he wouldn't let me push the shopping cart
with him in it, he had to have Val do it...so spoiled...rotton
too. I tell him that all the time then I say "but I love
you anyway"..I just want him to have a great Christmas...just
because I sit and think about his first Christmas in the hospital
under a oxygen tent with pnemonia and no one came to visit him
except Me of course and a volunteer with cookies and a baby Quilt...His
Parents never showed up and I hated seeing him like that...so
sick but aware of everything...so from now on I try and make his
christmas special...I think we are going to make cookies tonight
and maybe somemore fudge too....he loves to cook. So from our
hearts to yours We wish you Happy Holidays..and may Jesus be the
reason for giving this season.
God Bless,
Deeana & Cameron HLHS 4yrs old Post Fontan-Pacemaker
November
05, 2006
Hello All,
Its been a whole month since our last update and Cameron has been
sick with allergies and colds this whole time. He is going to
the Dr. tomorrow to see if there is another med that can be given
to stop his runny nose, cough, just when I think he is getting
better...here it comes again....and going to school has been so
hard for him. I think his immune system has really taken a beating.
He was superman on halloween and went trick or treating to only
a few houses because he became so tired.Some superman huh..but
still my hero.. He has a pacemaker checkup on the 28th of this
month..I hope he is better by then. He is suppose to get his flu
shott tomorrow but I don't think they will give it to him with
his lungs being congested. Albuterol does not even effect him.
So maybe dr can prescrib another breathing treatment...Keep him
in your prayers that he can overcome this all soon without going
into the hospital. I'll let everyone know how the dr visit goes
tomorrow. Thanks for your faithful prayers...God is still in control
and to him be the glory.
Heart Hugs,
Deeana grandma to Cameron HLHS 4yrs old Post Fontan-pacemaker.
August
30, 2006
We went in for his pacemaker checkup and he is doing well. Dr
Caton said he will see him again in 3months and that his pacemaker
is doing great and to give him a call if Cameron starts to tire
quickly he may need to adjust the pace...especially since Cameron
will be doing more running around in Preschool soon...but for
now he is doing fine.
NOW TODAY NEWS: Cameron had his Nephrology appointment and his
Renal or Kidney Ultrasound to see how much his Kidney has grown
in 9 months. Well it really didn't grow very much...last time
it was 7.8cm now it is 7.9cm. I talked for a long time with his
Nephrologist and he said that Cameron's Kidney is doing its job
for now and that Cameron has grown a bit but his Kidney is keeping
up so far he is in the 70 percentile for kids his age... for weight
and height....He said that for Cameron's weight and size he really
would have like to see his kidney around 9.4cm. and that would
be great...(but)... that Kidney transplant will most likely be
in a distant future for Cameron...Many many years unless he starts
to have problems.
Today they tested his urine for protein and there was a trace...which
can be normal...but Cameron's has been negative for over 2yrs...so
to hear trace..kinda scared me..I will keep checking with urine
dips every so often to make sure he is not relapsing into his
Nephritis syndrome. Dr said if he is positive for protein for
over 3 days to call and get him in to be seen...I hope that never
happens..also he said that Cameron has been in remission from
his Nephritis syndrome for 2yrs now and after 3 yrs remission
it usually does not return.....So GO Cameron GO....I can't imagine
him having to go thru another trial in his upcoming years....I
don't even know if his heart can handle a kidney transplant...but
hopefully I won't have to deal with it all for many many years
as the doctor put it.
I will continue to trust God for everyday given..I know he goes
before us and all ready knows our future. I choose to give God
the glory yesterday, Today, and tomorrow. I would asked that each
and everyone just keep Cameron in your prayers and believe God
for a healing of Cameron's Left and only Kidney. Nothing is impossible
for Our God.
It means a lot to know that so many care for our little man, and
are faithful to pray for us.
Sending out lots of Heart Hugs,
Deeana,
grandma to Cameron HLHS 4yrs old Post Fontan-pacemaker
July
24, 2006 at 10:54 AM PDT
Cameron has a new baby brother born yesterday at 10:15am and weighted
in at 7lbs 8oz. His name is Tyler Mckinley.
Cameron is so proud of him. He will be coming home today sometime
so Cameron and I are going to visit him and bring him a present
or two.
Cameron is doing well staying out of the heat, but his ezcema
is really acting up. Well thanks for checking in on us and keeping
us in your prayers I'll post again if there are any changes before
his next Dr appointment on the 11th of Aug....I think he will
be getting immunizations on that day...God bless to everyone.
Deeana
grandma to Cameron HLHS 4yrs old Post Fontan-pacemaker
July
12, 2006
Just a little update on Cameron's upcoming appointment...with
Nephrology...it was canceled today and rescheduled for Aug 30th.
He will be getting a ultrasound on his left Kidney...only kidney
to check on the size...they need to see if it is growing yet.
They will compare last ultrasound then I will talk with the Dr.
To see if there was any growth....Lets all pray that his kidney
has grown since getting his Fontan...I am hoping with the new
cirulation his kidney kicked into gear. I also found out that
the ultrasound will in no way effect his Pacemaker...yay...one
less thing to worry about. I just give it to God he works everything
out. Praying God keeps everyone Happy, Healthy, safe another day.
Deeana
grandma to Cameron HLHS 4yrs old Post Fontan-pacemaker
his website http://home.earthlink.net/~ladyaudene/cameronslittleheart
July
4, 2006
Cameron
is well, doing great so far even in this terrible heat. His eating
is still something to be desired but can't complain he is here....and
that all that matters. His next dr appointment will be next month
on Aug 11th. He will be getting his Kidney checked...but not sure
how. I will have to call his Nephrologist to see how they are
going to do this...since his pacemaker is placed in front of his
kidney I don't think they will be able to do an ultrasound or
any scans that uses magnetic resources for it will cause his pacemaker
to malfunction and we can't have that....so I guess I will find
out tomorrow when I call them...IF... they are in their office.
I am so sorry for not posting an update sooner but everything
is going great...Cameron is now into using my computer for his
pre-school games..and he is just amazing...he can count to 100...and
knows all the letters of alphabet but gets confused with lower
case letters..but if everything is in Capitals he can read them
right out. Hope to start introducing words soon...He just turned
4 in May and it would be great if he can read books by 5. I don't
want to push him too hard...but when everything is in game form
on the compurter he will stay on it for hours.
April
05, 2006
Hello everyone, Cameron is doing very well, even posted a new
photo in his suit. Got a call from Cardio clinic and Cameron was
suppost to have a echo and pacemaker checkup this month but it
is now set for May 30th...it will be an all day appointment but
of course it always is. Anyway I thought I would just update everyone
since its been a while since he got over his cold.
Since he is doing so well we are planning a little trip to Disneyland
on the 25th where I know he will have lots of fun.
Well better go, Cameron is getting into something cause he is
a little too quiet. Thanks for your prayers and as always may
God keep everyone safe, healthy, happy another day
Deeana
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