October 3, 2006

Hi
Sorry it has been a while since I have updated. I have been so busy with a almost 3 year old. Mackenzie has grown so fast over the past year. I cant believe she is almost 3 years old. When I think about the past 3 years and how much we have been through. Makes me think that I'm so lucky that I have this beautiful little girl to show for. I think god everyday the gift that he has given me. Not only with just Kenzie but for my other 2 kids and the one that is on her way.

Kenzie is still getting her g-tube feedings and growing everyday. She is about 24 pounds and is finally on the growth chart, barely. She is so stubborn that she likes to fight you when you try to tell her no or put her in time out. We are still working on speech therapy and soon will be doing something different. She is almost 3 so that means its time for pre school. Its time for us to decide on what kind of service we want for her. I'm hoping I can do the right thing for her. It seems scary for me to send her to school. I'm always afraid shes going to get hurt or need me and I wont be there to help even though I'm a phone call away.

We are also now expecting another new one. She is due in Dec. We had a fetal echo done about a month ago and it showed that the baby has a four chamber heart. Also all the test show that the baby is healthy. We still wont know until she decides to come into this world.

Please pray for all of us on having a healthy baby and Kenzies speech therapy. Thank you for every bodies thoughts and prayers.
Ami

February 24, 2006

Just to let everybody know. Kenzie is doing very good. She has made it to 22 pounds and is eating more by mouth. She has turned into a typical 2 year old into everything. If she doesnt get what she wants she throws a fit. Her main problem is right now is not communicating so we have been working with signing and her therapy is wanting to start something that has to do with pictures. She will eventually be able to tell us what she wants by pointing at a picture. Please pray that we can start communicating with her. It is very hard to be able to tell what she wants when she just wines and points. I sent a couple of new pictures for you hope you got them. Let me know if you didnt. Thanks to everybody for your thought and prayers.
Ami

December 125, 2005

Hi everybody,
Kenzie is growing up quick and in her terrible 2 stage. Into everything and is doing great. She just had tubes put in on the 22nd of Dec. and is getting ready for a heart cath. on the 17th of Jan. We just had our Christmas and she really liked unwrapping her presents and playing with her new toys. Sorry I havent updated for a while. We have been very busy with everything. Thanks for everybody's prayers
Ami

August 17, 2005

Hi everybody! I justed wanted to let you know how Mackenzie is doing. She is eating everything you can think of. She is walking and trying to run. We are getting ready to go see the cardiologist today. I hoping we have good news there. She is also getting a hearing aid today for the left ear. Please pray for us. Getting a hearing aid is a big adjustment for her and us. At the same time I'm worried about it and then I'm happy that she is going to be able to start hearing us. Thanks for all your thoughts and prayers.

July 31,2005

I'm so sorry for the late updates but having a busy baby like Mackenzie it is hard to get away. She is doing awesome walking and into everything she can get her hands on. Yes she finally started walking a month ago.

So far she's doing good on the heart situation although there is a chance for another heart cath in the future. Her doctor is trying to hold that off until after the first of the year.

We did find out that Mackenzie has a slight hearing loss. She is getting a hearing aide for the left ear to help her be able to hear somewhat normally.

I just want everybody to know that I think I have a very smart baby. I asked her to turn the tv off and guess what she did it. Then she clapped because she knew she did something good. Mackenzie is also going to start dance classes this Aug. She likes to dance and I know she will do good.

She is also starting to eat more and more by herself. Although we still have to do tube feedings. She is still on a continous feeding at night and then she gets only two feeding during the day by the tube. The doctor wants to try to take her off the feedings completetly during the day eventually. Please pray that she continues to gain weight since we have had problems with that in the past.

Thankyou everybody for your thought and prayers.
Ami

May 18, 2005
Mackenzie is doing really good. She has gained some weight and has made it to almost 18 pounds. She is also eating some food and really likes to eat baby food and does not like baby food at all. Its funny to watch because when you are eating she thinks that she has to have what you are eating. I'm so glad she actually wants to eat.

She has also started crawling and pulling herself up to things and walking around stuff. We also had a test to see how delayed she was and guess what she is only 7% delayed that made me very happy. Only problem is that they said if she isn't walking by 18 months then we need to test again. I don't think we will have a problem with that she is already trying to walk.

On her heart they are wanting to hold off on a heart cath for a while. We are trying to hold off until the first of next year if possible. So far she does have some pressure on the right side and her heart is a little bit enlarged but they just want to follow it closely.

January 30
Mackenzie had her heart cath. on Jan 27th. She is still doing really good and is still gaining weight. She has also learned how to sit up on her own, and is almost crawling. Mackenzie has come along way. Thank you for all the prayers.

December 8,2004
Mackenzie is now weighing in at 14 lbs 8 oz. She is going in for another heart cath. in about another month. She is actually doing very good. Mackenzie has finally learned how to sit up on her own and is rolling everywhere. She has figured out how to get from one side of the room to the other side. Its so funny to watch. Thanks so much for everybody's prayers and support. It has really helped.

October 30, 2004
Mackenzie is gaining weight. She started out at 11 lbs 14 1/2 oz. Now her weight is 12 lbs 13 oz. She seems to be going back and forth from 12 to 13 lbs right now. Thank you for all the prayers; we need them to stay out of the hospital.

October 20, 2004
Doctors said today they want to put Mackenzie in the hospital in 2 weeks if she does not gain weight. She is now on a continous feed.

Mackenzie had her first open heart surgery when she was three weeks old. She was also diagnosed with Di George Syndome. Since then Mackenzie has had a G-Tube put in and a heart cath. The heart cath did not work so we are going to have to have it done again. She is also not gaining weight do to her syndrome. This has been a really hard struggle. They are talking about more open heart surgeries as she gets older. Please pray for my daughter to start gaining weight and grow.