June 09, 2008

HELLO ALL ZACHARY WENT TO SEE HIS PED TODAY. SHE SAID HE LOOKED AWESOME. HIS PULSE OX WAS 90% WTG ZACAHRY. SHE SAID HIS COLOR WAS GOOD AND HIS SURGERY SITE LOOKED GREAT.
OUR NEXT VISIT IS WEDNESDAY WITH THE CARD. I WILL UPDATE AFTER WE GET BACK
KEEP THOSE PRAYERS COMING THANK YOU SO MUCH
MUCH LOVE AND HEART HUGGSS
ANN

June 04, 2008
2 DAYS POST OP ZACHARY IS IN THE STEP DOWN UNIT HE IS EATING CHICKEN NUGGETS FRENCH FRIES AND DRINKING MILK. HE IS WALKING AROUND AND IS AS HAPPY AS CAN BE. WE ARE TRUELY TRUELY BLESSED
MUCH LOVE AND HEART HUGGSS
ANN

May 27, 2008

WE ARE VERY NERVOUS. PLEASE PRAYER FOR ZACHARY THE SURGEONS THE NURSES HIS MOM AND DAD OUR WHOLE FAMILY ON JUNE 2ND.
ZACHARY WILL BE HAVING HIS FONTAN THAT DAY.
HOW THAT IS MY QUESTION HE RUNS HE PLAYS HE LAUGHS HE LOVES WE WANT THIS SAME ZACHARY TO COME HOME WITH US
WILD AND WEIRD THINGS RUN THRU MY MIND
PLEASE PRAY
THANK YOU
LOVE
ANN

September 09, 2006
Okay we are home thank you thank you for all your prayers for Zachary. I am glad that the hospital up here sent him to chop because Zachary DOES NOT have asthma Yes you heard me right he does not have it. The ent doctor at chop did a scope and what he found did not shock me Zacharys left side of his vocal chords are paralized. He said this happens to lots of babies that have a breathing tube but his was from Dec. 2005 Anyway he will always be a very very noisey breather; I could live with that. He will also have a horse voice when he talks. Once again I cannot thank my carepage family for your prayers and postive messages. One other thing I wanted to say to you is that you people really dont know how much you mean to me... LOVE
ANN September 08, 2006 URGENT PRAYER NEEDED. ZACHARY WAS JUST TAKEN BY AMBULANCE TO CHOP BECAUSE OF THE BREATHING. THE ER FEELS THAT HE HAS A PINCHED AIRWAY OR SCAR TISSUE IN HIS THROAT. PLEASE PRAY. I AM LEAVING SOON TO GO. JAMIE WENT WITH HIM IN THE AMBULANCE LOVE ANN

September 05, 2006
When we took Zachary to see his card dr and question her about his weezing and shortness of breath she just said it was upper air way and he need to see ent. Well quess what! It is not upper air way; he has asthma; he had a breathing treatment right in the doctors office and he order a neubilzer for home having treatments 2 times a day.

With his card dr telling us that it was all upper airway and finding out that it is not. I am now second thinking her about everything else she is telling us. I am calling another card to check Zachary out just for a piece of mind. Love
Ann, Jamie and ZacharyAugust 31, 2006
Early Intervention was here today. Zachary does not need them. All the testing they have done on him shows him to be between 12 and 15 months of doing things..woohooo you go baby boy!!!!
I did ask about his speech and him not talking or saying very many words what Iwas told is that Zachary's brain is so in tune with him walking it is not worried about the talking yet.. that will come in time.

Thank you all for your faithfulness in praying for us.
Love
Ann

August 29, 2006
Zachary had his appointment with Dr. Jin (his card.) Zachary's heart function is great. His oxygen level is 81% and I question that she said it would be low until his last surgery. I also question her about Zachary getting out of breath fast now that he is walking she said that he will he needs to learn his limits how to you teach a 13 month old limits. His bp was 101/74 heart rate 131 weight is 22.12. As far as what we call weezing the dr thinks it is all uppper air way and Zachary needs to see a ent because of the vocal chords being damage with the breathing tube.

Right now Zachary has an ear infection so be are better off seeing one of them anyway,and we can get a plan in action for him. Thank You all for your prayers and messages for my family.. Love
Ann,Jamie and Zachary PS MY HEART SCAN CAME BACK NORMAL THANK YOU ALL GOD IS GOOD

August 23, 2006

Zachary gave us a scare tonight that send us tto the er. Has Jamie was giving him his heart medicine he brought his hand and knock it out of his moms hands spillin some of it. so we did not know how much he had and we called the doctor who in turn told us to go to the er. Well they did not seem to be in any hurry to see Zachary and I was not going to let him wait we need to know and watch his blood pressure. I am a big mouth when it comes to things getting done when needed. Thats the last time we will go t that er there is 2 others that if need be can go to. This is a baby who if his pressure went to high could have a stoke or heart attack..I made myself known and had my grandson seen and the bp watch for about 1 hour. Thank God everything is okay and the first pressure was high but the last 2 came down. NO wonder I keep getting grayer and grayer
Then the nurse said to me that i probaly know more about hlhs then he did. Why do they go to school. We are home Zachary is tucked in bed now i am off to bed. LOVE
ANN

August 18, 2006
I REALLY DONT LIKE POSTING ANY HEALTH ISSUES ABOUT MYSELF ON ZACHARYS CAREPAGE BECAUSE I FEEL HE IS THE ONE THAT NEEDS THE PRAYERS. BUT I ALSO THOUGHT WHAT BETTER PLACE TO GO FOR PRAYER THEN HIS CAREPAGE. ANYWAY I WAS FOUND TO HAVE AN ABNORMEL EKG NOW I MUST GO FOR MORE TESTING. I HAVE THE CHEST PAIN THE SHORTNESS OF BREATH. SO I THINK I REALLY NEED TO HAVE IT DONE. PLEASE PRAYER THAT EVERYTHING IS FINE OR THEY COULD FIX IT. I AM THE ONE THAT IS SUPPOSE TO BE THE STRONG ONE FOR JAMIE AND ZACHARY AND THE REST OF MY FAMILY AND RIGHT NOW I FEEL I AM AT MY WEAKEST.JAMIE IS SCARED BECAUSE OF THE SIDE AFFECTS OF THE TESTING BUT I KEEP TELLING HER I WILL BE OKAY. I STILL HAVE TO BE STRONG. I JUST ASK ALL ZACHARYS CAREPAGE PRAYER WARRIORS TO PLEASE REMEMBER ME IN YOUR PRAYERS ON AUGUST 23 AND AUGUST 24 AS THOSE ARE THE DAYS OF THE TESTING.
THANK YOU SO MUCH
MUCH LOVE AND HEART HUGGSS
ANN

August 5,2006

MR. ZACHARY IS DOING FINE. WE HAVE OUR LAST FEED STUDY APPOINTMENT ON AUGUST 14 IN PHILLY AND HE IS ALSO HAVING A SEDATE ECHO, ZACHARY IS NOW TAKING MORE AND MORE STEPS ON HIS. THE ONE THING THAT STILL BOTHERS ME IS HE IS 13 MONTHS OLD NOW AND STILL HAS NOT CRYED ONE TEAR OUT OF HIS EYES. HIS PED SAID HIS EYES ARE MOIST BUT I STILL QUESTION IT. I THINK I WILL ASK HIS CARD WHEN WE SEE HER...
THANK YOU ALL FOR ALL YOUR PRAYERS AND HAPPY THOUGHTS FOR OUR FAMILY.
LOVE
ANN JAMIE AND ZACHARY

June 08, 2006

WELL WE ARE HOME WHAT A LONG DAY .  FIRST MET WITH ZACHARYS HEMOTALISGT DR RAFFINI SHE ORDERED BLOOD WORK ADN TALK TO US ABOUT ZACHARY WEARING A SOFT HELMET NOW THAT HE IS STARTING TO TODDLE AROUND. THATS INCASE HE MAY FALL AND BANG HIS HEAD WE DONT WANT ANY BLOOD CLOTS TO FORM.

ALSO WHEN ZACHARY HAS HIS LAST SURGERY SHE IS GOING TO CHANGE HIS LOVENIX TO COUMADIN CRASHED UP..SO SHE IS GOING TO ORDER A MACHINE FOR US TO CHECK HIS PROTIME. THEN OFF TO VISIT THE UROLIGIST IN THE KING OF PRUSSIA SATILLE CENTER . DR SYNDER IS A VERY NICE DR HE SPENT A GREAT DEAL OF TIME EXPLAINING THINGS TO US AND ONE THING HE DID SAY THAT WHOEVER WAS THE REDISENT THAT SAID ZACHARY NEEDED RECONSTRATED SURGERY WAS TOTALLY WRONG AND HE COULD NOT SAY HE WAS SRY ENOUGH.

THANK YOU ALL FOR CHECKING IN ON MY GRANDSON AND PRAYING FOR MY FAMILY.
LOVE
ANN JAMIE AND ZACHARY

June 01, 2006

ZACHARY IS DOING WELL HE IS GOING TO BE 11 MONTHS OLD ON THE 6TH OF JUNE ..WHAT A BLESSING THESE LAST 11 MONTHS HAVE BEEN ZACHARY HAS THRIVED SO MUCH AND EACH AND EVERYDAY HE LEARNS SOMETHING NEW WHAT A JOY IT IS TO WATCH HIM LEARN. HE LOVES TO GET INTO TROUBLE LOL. I ASK FOR YOUR CONTINUE PRAYERS FOR HIM AND MY FAMILY. I AM THE ONE GOING THRU A HARD TIME RIGHT NOW
SO MUCH HAS HAPPENED THIS LAST MONTH I LOST MY AUNT ON MAY 16TH I WAS VERY CLOSE TO HER AND WAS ABLE TO TALK TO HER ABOUT EVERYTHING. SHE WAS ONE OF ZACHARYS STRONG PRAYER WARRIORS..
THEN LIVING IN A NEW PLACE HAS NOT BEEN EASY. WE FEEL LIKE OUTSIDERS AND HONESTLY ARE HAVING A LOT OF MONEY PROBLEMS. I THOUGHT IT WOULD BE BETTER TO BE CLOSER TO ALL MY CHILDREN BUT BOY WAS I WRONG. IN CLOSING ZACHARY GOES BACK T OTHE DOCTORS IN CHOP IN JUNE. ENJOY YOUR CHILDREN THEY ARE GODS GIFT LOVE
ANN